Exploring Critical Issues in the Ethical Involvement of Children with Disabilities in Evidence Generation and Use

This working paper explores the main ethical challenges, and corresponding mitigation strategies, in relation to involving children with disabilities in evidence generation. Children with disabilities are defined as individuals under 18 years of age who have long-term physical, mental, intellectual or sensory impairments that, in conjunction with various barriers, may hinder their full and effective participation in society on an equal basis with others. Evidence generation activities are defined as research, evaluation, data collection and analysis.